Gideon's MRI was clear. No tumors or growth abnormalities! Huge relief! There are two other possible causes for his seizures, and although scary and somewhat long term, feeling blessed it isn't worse! The two other possibilities are both genetic seizure disorders that are NOT hereditary. They both have to be managed with two doses of seizure medication a day. Gideon has already received this dosage at the hospital and has responded well to what is considered to be the safest drug available. He will continue to take this dosage for what sounds like an extended amount of time. Thankfully, 60% of toddlers with either of the disorders out grow them by the the time they are 5 or 6 with no long term effects of their brain.
Gideon had a good day today. He was awake most of the day which is a huge change from the last few. He is still adjusting to the meds, and is too unsteady to walk or stand on his own, but he is very much himself. He was even quite feisty and play wrestled with me for quite awhile this afternoon. Words cannot describe how good it is to see "him" again and not the cranky zombie kid that he was.
Hopefully, if Gideon has no more seizures today or tomorrow morning, we can go home in the afternoon. We are both exhausted. I have only slept an hour since Saturday night, and it starting to take its toll! :)
1 comment:
Thank goodness everything is looking good. You have been in our prayers.
Post a Comment